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Sunday, January 30, 2011

Taking Cerebral Palsy to the Hospital

Oh! Dear God! Dear God! It hurt. It hurt. My parents had just dropped me off because it was Sunday and class was Monday .With clammy hands I dialed Mom. It hadn't been two minutes before that we completed our nightly call. I had had a stomachache throughout the day but felt fine in the late afternoon. On the phone, I screamed in pain multiple times. This was pain I had never experienced before and knew something was wrong. My dad finally came and took me home. On the way home, I wanted to go to the hospital but Dad suggested I lie down first. Fine. I get home and my parents put me in the bedroom closest to them. I was vomiting all night. I also asked to go to the hospital but my parents did not take me. You have to understand that because I have Cerebral Palsy and involuntary movements; the ER can be incredibly difficult. My parents did have a point but I was the last person who wanted to validate it at 3 a.m. vomiting. Throughout the night, I would try to find positions to ease the staggering pain but nothing sufficed. It was constant pain and I could not do anything-that's how I knew it could not possibly be the flu. I felt like my right side was going to break because of the never-ending pain.

On Monday morning, my parents had called the doctor. The pain was better but still very much apparent. I went to the doctor and he felt my stomach. It hurt in all the right places for it to be a kidney stone, gallbladder, or appendicitis. I was sent straight to get a CT. Lying still proved to be difficult but manageable. From the CT, we found out I had a kidney stone!

After we found out about my 6 by 4 millimeter kidney stone, we had a decision to make. We could go home and schedule the surgery or be admitted that night, I was all for staying at that hospital. The night before could of been equated to the worst night of my life and I didn't want a repeat. One hour later, I was in a hospital room. My dad had been with me the entire day so Mom came and took over. I should mention that our doctor was brilliant enough to send me to the pediatric floor due to the staff being more open minded and they sure were. I met possibly the best nurse in the entire world. She was very understanding about certain issues that I had. For instance, I have a very difficult time going to the bathroom in the middle of the night so Mom asked that fluids be minimal until the morning. She understood the situation and made it possible. I was all settled by 6:30. I was in the bed, comfortable, and on morphine every hour and 45 minutes. 6:30 on a Monday? I quickly remembered The Bachelor was on. My dad wouldn't even watch it but a girl cannot miss her favorite show. Johanna, my nurse was no stranger to the Bachelor. As she was putting my IV in, she watched it with me. She was great at reading my nonverbal cues which was a blessing! All day I had had no appetite, however when the nurse gave me chocolate ice cream to help with the pill I needed to take, that chocolate ice cream was heaven especially knowing I couldn't have anything after midnight.

On Tuesday morning, I woke up to Johanna introducing me to my next nurse who paled in comparison. The doctor came in and told me what would happen during surgery. When the physician’s assistant came in and said, we're ready, etc. I got a little scared. This is when I thought, do they know about CP? Movement disorders? All those thoughts went into my head like a bed of nails. I did start to cry a little but at the same time, I wanted this thing out of me!

I could barely keep my eyes open after surgery. Between the drugs and lack of sleep, opening my eyes was a feat. They had put a stent in so everything would move correctly. When I went home, the stent was incredibly painful which they had neglected to tell us so I basically was bed ridden. I was on incredibly strong pain killers which made me exhausted. I didn't have my sense of humor; I would say Hannah disappeared for a week!

After a week had gone by, I had a mini surgery where they removed the stent. After 7 days, I finally felt normal. I cried with joy. Feeling normal had never felt so good. Reflecting back, I agree with my parents decision not to take me to the ER. It would have been more difficult than what we ultimately did. Bringing Cerebral Palsy to the hospital was hard enough, we didn’t have to make it more difficult!

It was the next Monday. My stent was out and I felt normal. I found myself in my dormitory lounge watching The Bachelor; my only concern was that it had a tremendous amount of homework. It was my normal routine and I had a new appreciation for it. I’m incredibly blessed to not have ongoing medical issues. I was in the right place this Monday!

Before I wrap up, I do have joyous news. Just today, my godson was born. His name is William James Endres. It is my cousin, Lauren and her husband Scott's son. I know everybody says they will make great parents but it is the epitome of truth for this couple. I couldn't be more thrilled and our family is simply ecstatic!

As for me, I start spring semester tomorrow. This semester will include my independent study and a lot of adventures, of course!

All My Love,

Hannah